Update December 13, 2022 - Updates and Comments

Dec 13
UPDATE 3:50 pm pdt

Things have gotten worse since i posted the update this morning.

 

I just got off the phone with Amanda and she is freaking out. I'm furious.

 

They weren't getting her biopsy scheduled, so she called the airline and had her flight moved to Friday. But then, they finally got back to her, and told her that, after all the waiting we've already done, once their scheduling person actually gets a hold of her case, it's going to take another 2-3 DAYS for them to review it to determine IF she's EVEN ELIGIBLE FOR THE BIOPSY. And after that, the earliest appointment they can book for her is THE MIDDLE OF JANUARY.

 

I'm going to refer again to what was said in the update above. These liver lesions appeared within the last two months. What can happen in another six weeks? And when i said that the first time, it was because we would have to wait six weeks after the biopsy for results. Now, that's six weeks of waiting to even get the damned thing, plus six weeks of waiting for results, so that's March. That's fucking March. That's fucking March before we can get answers to what we're even up against and what treatment plan can even be recommended. Fucking March.

 

She talked to Dr. L and he is again insisting that we need to change our insurance. He says this is because of our HMO, and that all HMOs will be the same. I don't know enough about insurance (anymore) to know if that's true, but he wants us to get on a PPO plan. He insists that a PPO plan would have had this done already. He wants us to look into Blue Cross Blue Shield. He's stressing again that the treatments he's going to recommend are going to be hundreds of thousands of dollars. We need to get on a high premium, low out of pocket plan.

 

This stupid fucking country and its stupid fucking healthcare system.

 

She got on a waiting list for earlier appointments in case there's a cancelation. She can't, or at least shouldn't, come back to Wisconsin while she's on that list. If the opportunity comes up she needs to be there to take it.

 

I'm gonna spend the rest of the night looking into PPO plans. It's possible we can get on one that will start at the beginning of the year, and then we would be able to schedule this thing with the new insurance within a couple days. But that's still looking at 2-3 weeks to wait, which isn't much better.

I might abandon the house and drive back to California until we get this taken care of. She needs me and i don't think i can handle being here right now.

 

4:35 pm pdt

um. okay. so update to the update. they just called her again. she's been approved, and there was a cancelation tomorrow morning that she can take.

 

the last hour has been the most absurd rollercoaster.

 

i cannot overstate the sense of relief i'm feeling right now. i feel like my lungs are gonna pop.

 

5:35 pm pdt

Dan i wasn't replying because a friend picked me up and we went to get some food & drinks. But yeah, that was a good guess too.

 

New update though, looks like the biopsy will be done tomorrow and she can still make that Friday flight. So i guess i'm staying put for the time being.

 

 

Dec 14 

7:58 am pdt

she's at the office getting prepped. biopsy in1 hour (9 pdt/11 cst). she will be sedated. Alyssa is with her.

 

11:05 am pdt 

biopsy is finished. she's sleeping off the sedatives now. they're gonna keep her for observation for 90 minutes and then release her to Alyssa.

 

1:08 pm pdt

Amanda is awake and cognizant and has been released to Alyssa's capable care. She said, "they made me get out of my comfortable cocoon of warmth and drugs." i told her, "you can make another comfortable cocoon of warmth and drugs at Alyssa's house," so we'll see how she does with that. She's gonna video call me when she gets settled.